The goal of this pilot study is to assess the feasibility of adapting and delivering theexisting home-based epilepsy self-management intervention, HOBSCOTCH, for people withPost Acute Covid Syndrome (PACS).The main questions it aims to answer are:Can the current HOBSCOTCH program be adapted for people with PACS?Will people with PACS experience improved quality of life similar to that found in peoplewith epilepsy after participating in the HOBSCOTCH program?Participants will be asked to: - attend nine, one-hour virtual (online and/or by telephone) HOBSCOTCH-PACS sessions with a one-on-one certified HOBSCOTCH-PACS coach - complete a brief clinical questionnaire about their diagnosis of PACS - complete seven questionnaires before and after the HOBSCOTCH-PACS sessions about their quality of life, memory and thinking processes (objective and subjective cognition), about their physical and mental health and about autonomic symptoms associated with their diagnosis of PACS - keep a short daily diary (using a smart phone app or on paper) about their PACS symptoms and use of the self-management strategies taught in the HOBSCOTCH-PACS program - complete two brief surveys to assess satisfaction with their experience after the entire HOBSCOTCH-PACS program
Not Provided
Behavioral: HOBSCOTCH-PACS
HOme-Based Self-management and COgnitive Training CHanges lives (HOBSCOTCH) HOBSCOTCH is
a home-based self-management program to treat cognitive symptoms and improve quality of
life, while minimizing the barriers of access to care. The program is based on Problem
Solving Therapy (PST) and teaches problem solving strategies and compensatory mechanisms
to help manage cognitive dysfunction and enhance quality of life. HOBSCOTCH-PD is an
adaptation of the HOBSCOTCH program for people with PD and incorporates education about
Parkinson Disease and cognition into the education module.
Inclusion Criteria:
- Literate, English-speaking with grade 12 or equivalent in education
- Self-reported diagnosis of PACS
- Self-reported cognitive/memory difficulties
- Telephone and internet access
Exclusion Criteria:
- Cognitive dysfunction that precludes participation in giving informed consent
- Significant visual impairment precluding reading or writing
- No reliable telephone or internet access
- Neurodegenerative illness (i.e. dementia)
- Acute psychiatric disease
Dartmouth-Hitchcock
Lebanon, New Hampshire, United States
Investigator: Sarah J Kaden
Contact: 603-540-5824
sarah.j.kaden@hitchcock.org
Sarah J Kaden, BA
603-540-5824
sarah.j.kaden@hitchcock.org
Elaine T Kiriakopoulos, MD, MPH, MSc
603-306-1538
elaine.t.kiriakopoulos@dartmouth.edu
Elaine T Kiriakopoulos, MD, MPH, MSc, Principal Investigator
Dartmouth-Hitchcock, Dartmouth College